Shannen Broodryk’s alarming experience highlights the dangers of a little-known brain disorder.
Shannen Broodryk, 28, was diagnosed with a rare brain condition that caused her vision to sporadically “switch off,” even while driving on the M5 motorway. During a journey from Oxford to Bristol, she suddenly found herself unable to see.
In a miraculous turn of events, Shannen managed to pull over onto the hard shoulder just in time, narrowly avoiding a potential disaster. She had previously experienced episodes of temporary blindness but felt her concerns were not adequately addressed by healthcare professionals.
Eventually, she was referred to an eye hospital, where she was diagnosed with Idiopathic Intracranial Hypertension (IIH), a condition characterised by increased pressure on the brain. This condition can lead to swelling of the optic nerve, double vision, nausea, memory issues, and even speech difficulties.
To alleviate her symptoms, Shannen underwent surgery to insert a shunt, a thin tube designed to redirect excess fluid from her brain. Despite this, she continues to struggle with blurred vision.
Recalling her terrifying experience on the motorway, Shannen said, “I was on my way back from Oxford and lost my vision while driving. I could see light but had no idea what was in front of me. It felt like someone had put frosted glass over my eyes. I must have had an angel looking over me.”
Living in Horsham, Wiltshire, with her husband Joshua, Shannen had complained of dizziness and blurred vision in the months leading up to the incident. “I had a terrible headache and a ringing in my ears. It felt like my head was going to explode,” she recalled.
After the frightening episode, Shannen drove home and contacted her GP, subsequently visiting Bristol Eye Hospital for an examination. “I was in denial that anything was seriously wrong, but my vision still wasn’t right. I was panicked and terrified of causing an accident,” she added.
At the hospital, the doctor suggested inviting her family to sit with her, which heightened her fears. “I was scared I was going to lose my life. They needed to check for a large tumour, a blood clot, or IIH,” she explained.
Following an MRI and a CT venogram to rule out the tumour and blood clot, doctors discovered an abnormal level of cerebrospinal fluid (CSF). “They pulled out an unusually high amount of CSF during my lumbar puncture. Most people have levels between 10 and 17, but mine was above 45,” Shannen noted.
Transferred to Southmead Hospital, Shannen underwent further treatment to preserve her sight. “I couldn’t see the doctors, but the shunt they inserted saved my vision,” she said.
Despite the intervention, Shannen continues to deal with the repercussions of her condition, requiring medication to manage her symptoms. “The swelling has decreased, but the effects are still very much present. The pressure ruptured both of my retinas, leading to the loss of my driving licence for two years and my job,” she added.